Fionn Crombie Angus
Fionn Crombie Angus (he/him) is an extraordinary young man with Down syndrome. Combining his love for traditional Irish music and wildlife ecology, he has played his fiddle from the Amazon to Zanzibar. Instrumental in the UK’s Down Syndrome Act 2022, he consults with the Dept of Health and Social Care and conducts focus groups across England. His Happiness Project includes 700 interviews with notable figures in various fields. As the inaugural chair of IASSIDD’s Inclusive Research Group and a 2022 Distinguished Achievement Award recipient, he will keynote at their World Congress in Chicago. He co-runs Fionnathan Productions, lectures internationally, and is pursuing a joint doctorate with UVH and Trinity College Dublin.
Report
Two self-advocate leaders will collaborate with Harvard Law School Project on Disability (HPOD) to research the involvement of individuals with intellectual and developmental disabilities in preparing shadow reports. Under the guidance of HPOD’s Hezzy Smith and Anne Fracht, the fellows will explore how self-advocates engage in shadow reporting to the UN CRPD Committee, identifying barriers and strategies used to ensure their voices are heard. They will review reports submitted by both self-advocates and other disability rights groups and conduct interviews with participating self-advocates. The research aims to highlight successful strategies, such as Hungary’s easy-read reports, and provide insights for future advocacy efforts.
HPOD is committed to enabling civil society, and especially persons with disabilities and their representative organizations to undertake informed human rights advocacy. We provide human rights training and education, facilitate the development of international law and policy, encourage inclusive development practices, share technical assistance on strategic litigation, and stimulate new thinking about the abilities of persons with disabilities and their human rights.