Chaqueta Stuckey

Chaqueta Stuckey (she/her) worked with the Harvard Project on Disability (HPOD) and Self-Advocats Becoming Empowered (SABE). She worked with David Taylor to learn more about the experiences of people with intellectual disabilities (ID) receiving Home & Community-Based Services (HCBS) waiver programs. We wanted to know what people with ID think about the care they receive and how they receive it.  

Report

Exploring Research on the Experiences of Persons with Intellectual Disabilities in U.S. Adult Services Programs: Perspectives from Self-Advocates 

This research was created by Chaqueta Stuckey and David Taylor, two self-advocates with intellectual disabilities who wanted to understand the experiences of people with intellectual disabilities who receive Medicaid Home- and Community-Based Services (HCBS) waiver programs. Before the creation of HCBS waiver programs, most publicly-funded disability services were available only in institutions, which segregate adults with disabilities from society. HCBS waiver program services, in contrast, aim not only to prevent adults with disabilities from living in institutions, but also to support them to live independently in the community. Today, many people with intellectual disabilities in the United States receive the services and supports that they need to be included in their communities through their states’ HCBS waiver programs. The research was supported by Anne Fracht and Hezzy Smith from the Harvard Project on Disability. 

Read Chaqueta’s blog: Changing Negative Attitudes of Professionals about People with Intellectual Disabilities. 

Bio

Chaqueta Stuckey (she/her) is a young woman with intellectual disabilities who believes in self-determination and self-advocacy. She is the local President of Our Voices Count, Too Self Advocacy Council (OVCT), served as Past President of the state self-advocacy association. She is also a member of SABE-Self Advocates Becoming Empowered (national self-advocacy organization) where she has served on the executive board. 

Keywords

Disability Rights, Social Isolation, Social Connectedness, Relationships, Self-Advocacy, Community, Waivers, HCBS, Community, Self-Determination